How STATRA Governs your
Health Data

Protecting Patient Data With Transparency, Security, and Responsibility

At STATRA, we are committed to ensuring that every piece of health information shared on our platform is handled with the highest standards of privacy, security, and ethical responsibility. Our data governance framework is designed to protect patients, support caregivers and clinicians, and enable trusted research that improves sickle cell care.

Our Commitment

At STATRA, we believe health data should empower patients, not compromise their privacy. That is why we follow strict security and data governance practices to ensure all patient information is securely stored, carefully managed, and transparently used. Access to sensitive information is limited to authorized individuals only, and we continuously work to protect user data from misuse, unauthorized access, or disclosure while maintaining a safe and trusted care experience.

How We Use Data

STATRA collects and processes health-related information to provide safer, smarter, and more personalized care experiences for users living with sickle cell disease. This includes supporting symptom and crisis tracking, medication and treatment monitoring, caregiver alerts and assistance, clinical insights, and patient history management. We also use certain data to improve platform performance, strengthen security, and enhance the overall user experience. All information collected is limited to what is necessary to deliver effective support, monitoring, and healthcare-related services.

Consent & Data Control

Patients remain in control of their personal information at all times. STATRA provides users with clear visibility into how their data is collected and used, while also allowing them to decide what information is shared and who can access it. Users can manage caregiver and healthcare provider permissions, withdraw consent where applicable, and request updates or deletion of their personal data. We are committed to maintaining transparent communication and responsible data practices across every part of the platform.

Research & Ethical Use of Data

STATRA supports responsible research that advances understanding and treatment of sickle cell disease.

Where data is used for research:

• Personal identifiers are removed whenever possible
• Research access is carefully reviewed and approved
• Data is used only for ethical and medically relevant purposes
• Strict governance and confidentiality standards are maintained

Our goal is to contribute to improved outcomes while protecting the rights and dignity of every patient.

Building Trust Through Responsible Healthcare Data

At STATRA, data governance is more than compliance — it is a commitment to protecting the people behind the data. By combining security, transparency, and ethical responsibility, we aim to create a trusted digital environment for individuals living with sickle cell disease, their caregivers, and healthcare professionals.